What Are the Stages of Huntington's Disease?

A diagnosis of Huntington’s disease presents overwhelming challenges for both the individual and their caregiver. Understanding the disease’s progression through its three distinct stages can help families prepare for changing care requirements.

Early Stage

The initial phase features moodiness, clumsiness, and challenges with complex thinking. While uncontrollable movements may emerge, individuals typically maintain the ability to perform daily activities. This stage represents a critical window for establishing an exercise or rehabilitation regimen to support balance and coordination.

Middle Stage

During this phase, individuals encounter difficulties with employment, driving, and household responsibilities. Symptoms expand to include swallowing problems, weight loss, and balance difficulties. As major life transitions occur, individuals may experience isolation, making regular interaction with loved ones essential for emotional well-being.

End Stage

The disease reaches its final progression, where individuals struggle to leave bed and require round-the-clock care provision.

Legal and Personal Considerations

Caregivers should explore becoming a power of attorney or potential guardian to access medical records and care plans. Having conversations about advanced directives with the affected individual proves valuable. An experienced elder law attorney can provide guidance through this complex process.

Caregiver Self-Care

Maintaining personal wellness is critical. Whether through therapy, spiritual counsel, or trusted friendships, caregivers need outlets for emotional processing. Prioritizing one’s own needs alongside caregiving responsibilities ensures sustainable support for the affected family member.

If you or a loved one needs assistance with elder law or estate planning issues, do not hesitate to contact The Stegall Law Firm for guidance.